Patients have a right to privacy that should not be
infringed without informed consent. Identifying information, including
patients' names, initials, or hospital numbers, should not be published in
written descriptions, photographs, and pedigrees unless the information is
essential for scientific purposes and the patient (or parent or guardian) gives
written informed consent for publication. Informed consent for this purpose
requires that a patient who is identifiable be shown the manuscript to be published.